Sx had a hospital appointment today – we have been waiting two months for it and then I was only told on Saturday that we had it today. We got about 500yards from the hospital 30 minutes before our appointment…only to find the road was closed. We then got madly lost trying to find an alternate way through and nded up having to get directions in a dentists…and got there 10 minutes late. The appointment took forever so I had to rush back to get the little two from Jo (who had kindly taken them to swimming for me) and take them straight to Pilots with no dinner and no getting changed. This youth club is becoming a bit of a pain asI feel such a responsibility to get my two and their friend there every week as there are only 2 other people who go.
Lx has had a few appointments lately – with a neurophyscologist in Oxford, her speech therapist and today, with a pediatrician. All have had input into how they think her mind works, the areas she finds difficult in life and where her strengths are (although no-one mentioned being photogenic?!)
She was quite happy as it meant an afternoon off school and she didn’t take in the serious aspects of the meeting. But it is hard sometimes as a parent to talk about these topics and to wonder what her future holds.
Then after school poor Gx had to have a filling. He had told me it was in a baby tooth – which did seem strange that they would bother filling it – but I know nothing about fillings so believed him. Anyway, it turned out to be in a permanent tooth. He was very brave about it all – I sat in with him but couldn’t tell what pain levels he was experiencing as he didn’t clench his hands or tense his feet as I am sure I would in the same position. He found his numb mouth hilarious – and as Sx was at the park when we got home, I had to video him so Sx could see the effect on his voice.
Boiled eggs for tea and a chance for me to try out my new toy – an expodisc. Just a few photos to see how accurate it gets the White balance on the camera. Impressed so far!
A tricky day today. First off a pre-school shoot – taking school photo style shots of the children. Some were in a cap and gown (which I had bought for the occasion) and some without (if they were not yet “graduating” and moving on). All of these were indoors with lights (which is still a new skill for me and so very stressful).
It went well – only 3 refused to come and have their photo taken – but I managed to get candid shots of them instead.
Then off to a hospital visit to get the results of Lx’s neurological assessment that was done a few weeks ago. It was a difficult appointment – it is always hard to remind myself just how difficult my beautiful, cheerful, determined, funny daughter finds some aspects of life and how this will get harder and harder for her as she grows. I had hoped for better news than I got.
(all photos taken with iphone)
Whilst waiting for Lx to come out of school Dx was playing with a small ball. it rolled into the corner by the front door and he bent down to pick ut up He leapt up with it in his normal exuberant way…but hadn’t realised he was underneath the big metal post box sticking out from the wall. THere was a two second delay where I thought “that HAD to hurt” but there were no tears – and then the screaming began. And the blood. Lots of blood.
Luckily we went inside and a very efficient member of staff came to help us out, found what was needed in the medical room to clean him up and stop the bleeding. Then she bandaged him up to hold the pad in place. Dx wanted a photo to see what he looked like – and was so brave he even smiled for the photo!
(This post mysteriously disappeared? I know I posted it as I have emails saying people liked it – but I have reposted it as I cant see it anywhere 😦 )
Dx had to go back for blood tests today – so lovely to see him able to WALK into the hospital this time (excuse iPhone quality!)
Everything is fine and they gave him the all clear ater a urine test and a blood test.
365 Photo a Day project photo
“Happy New Year”
(Apologies for photo quality – today was a day of experimenting with my new iphone – the first time I have had a phone with a camera on it!)
Dx still no better this morning – standing on tiptoes and walking like a drunk 😦 We rang the hospital who wanted us to go in at 3pm to get him checked.
We had been invited to friends’ for New Years Even to celebrate with them and stay over so it was going to be last minute whether Dx and I were able to join the rest of the family or not. Matt was unable to come with us to drop us at the hospital as he was cooking a pasta dish to take in the evening so I had to struggle carrying Dx (full of Christmas chocolate and cake and weighing a ton!) through the car park, down the stairs to the reception where luckily I intercepted a porter with an empty wheelchair and he kindly agreed to wheel Dx to the ward.
Luckily they deemed him fit enough to go home again – we have been given an “open door” pass should he get any worse but otherwise we just need to go back on 8th Jan to get his blood checked again (which he is quite excited about as it means he gets another cool plaster!)
(Gx’s fondness for salad always makes me smile – he will happily eat a plateful!)
Even Lx had some chicken nuggets without making a fuss.
There were 12 children in the house and they all played so well together – the house was littered with foam Nerf gun bullets afterwards but there were no rows and nothing broken! Lx made friends with the other girls – and they created their own little “club” with rules and everything.
We counted down to the New Year with the children and a glass of Harrods champagne – and watched some of the fireworks on TV (Dx thought us doing Auld Langs Syne was hilarious).
We all managed to keep going till about 2am before we had enough and all collapsed on various couches, mattresses and roll mats round the house.
365 Photo a Day Project Photo
“Home where he belongs”
After a night in a children’s ward in hospital – I am more than happy not to repeat the experience and feel so bad for those who are in there for long periods.
I didn’t mind the noise of the baby who cried and cried for hours and couldn’t get to sleep – I just felt for her poor exhausted parents as they tried in vain to distract and settle her. And the little girl who screamed for about 30 minutes as they tried to take blood tests/insert a canula? Poor little thing. Both kept us awake but I just was so sorry for them being so upset and in so much pain.
What I DID mind was the couple who came in about 1.30 with their daughter and then talked to each other (not even to her) at full volume. In the end I went over and whispered to them that perhaps they weren’t aware that we could all hear every word…which worked for about 10 minutes before they carried on as if I had never spoken. As only one parent can stay, the Dad disappeared about 2.30 and came back at 6am and resumed his conversation – which included a number of swearwords and some subjects not entirely suitable for a children’s ward.
But overall it made me feel very lucky that Dx was in there for something so minor. The “noisy” couple were there for their daughter’s broken leg, fractured in 3 places and requiring 5 weeks of traction.Only 3 and she needs to spend 5 weeks lyingon her back 😦
Also in our section of the ward were a boy of about 14 who he told us “suffers from depression” who had injured himself so badly “jumping off something” that he will be there for 3 months before he can attempt walking. He was watched 24/7 by two social workers at a time who never spoke a word to him while we were there.
And opposite us was a lovely young boy struck down with a mystery illness which has seen his weight plummet, his skin break out and seen him spend the last 4 weeks in hospital, undergo numerous tests and with still no answers as to what is wrong with him.
We were lucky indeed.
After breakfast we saw the consultant who helped Dx to his feet and found he can now stand a little – very wobbly but a big improvement on yesterday. It turned out from the blood tests that his ear infection has spread infection through his body and it is affecting his muscles. But the great news was we could go home.
We sent a text to Sx on his mobile from Dx…(the missing word is “funny”)
Then lunch arrived – and as Dx is so picky, Sx was happy to help him out by eating his roast pork! D x wasn’t even very impressed with the jelly!
When the medication came, we set off for home…via McDs!
I am so proud of my littlest boy. We had a bit of a wobble about the idea of blood tests(but not even a wince when they were done) and a bit of concern about staying the night and not going home. But then he just got on with it. EVen when it looked like we might not make it home today. He grinned at the Doctors, tried everything they asked him to do even if it hurt and laughed when they pulled his body into obscure positions. I am so glad to have him home.
365 Photo a Day Project Photo
“Small Boy – Big Bed”
Dx woke up after everyone else and we knew he was awake from the cries coming from upstairs. his earache was better but his legs hurt and he had tried to get out of bed only to find he couldn’t put any weight on his feet.
We thought perhaps he had slept so deeply under the influence of the drugs that his legs had gone to sleep and just let him rest for the morning. At lunchtime he went to go for lunch and crumpled on the floor as he tried to stand. We put him to bed for a nap but he was just as bad afterwards so we set off to the out of hours Doctor.
We were warned of a 1.5 hour wait so I took the iPad for Dx and a book for me but he wasnt too under the weather to concentrate on the iPad and was just bored. He was in quite good spirits, quite chatty and laughing at my jokes but just couldn’t stand. After a couple of hours, the out of hours Dr saw him and was mystified and sent us to Accident and Emergency.
Another hour passed in the waiting room before we saw a consultant who had just heard all the details and was about to examine him when she was called away to an emergency. We were allowed to wait in the triage cubicle while waiting for the paged paeditrician to come and see him.
We played “Eye Spy” using the fantastic wall murals for inspiration.
We then saw a wonderful SHO who won Dx over and checked everything out while explaining to me what he was doing and how everything was looking good at each stage. His legs moved as they should, the nerves seemed ok, the joints weren’t swollen, everything looked good…until he asked Dx to try and walk. Then he could barely stand on tiptoe, his legs all bent out of shape and he was obviously in great pain. Time for a blood test 😦
Dx was so good about it (he and I looked at a dinosaur book while they took the blood from his hand and he didn’t even wince.
He even managed to find me a heart in the book – how brave is he!!
He got a special plaster and they told us we would be staying the night to keep an eye on him.
I have done really well not to ever have any of the children stay in hospital before – I tried to sell it to Dx as being a special experience. He played on the iPad while we waited for Matt to come in with my overnight bits and some food for us both as we were STARVING!